NBC’s Rock Center Interview with Rick Guidotti

June 10, 2013

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Clip of piece from June 7, 2013 by Dr. Nancy Snyderman.

The Rock Center segment profiles Positive Exposure’s challenge to the way the medical community sees genetic differences, and their goal of replacing the dehumanizing images from medical textbooks with photographs that speak to/represent the person, not just the condition. Joanna Rudnick states: “It’s a remove the “black bar” movement and Rick won’t be satisfied until a new parent can Google a child’s condition and see one of his photographs – of humanity of motion of childhood – rather than a disassociated body with a black bar masking and shaming their identity.”

Featured will be footage from the current rough cut of On Beauty featuring Nadia Merchant, a pediatric resident at Dayton Children’s who will never let size (Nadia was born with a genetic form of skeletal dysplasia), stares or naysayers get in her way. As she says: “People may think my biggest challenge is short stature – maybe that’s your challenge, but not mine.” See more of Nadia’s story. The piece also features an interview with Jenny Howe and Alisha Peters talking about how Rick gave them an unbelievable gift by capturing their children (both of whom have a Chromosome 18 condition) the way that they see them – not by the limitations, but by the life and light inside.

To read the full interview NBC Rock Center did with Rick click here.


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