Categorized in: Genetic Disorders
The New Yorker recently wrote an inspirational article about Pat Furlong, a mother with two children who suffer from Duchenne Muscular Dystrophy.
Duchenne is a genetic condition, coded on the mother’s X chromosome. It is the deadliest of the more forty disorders that go under the name muscular dystrophy.
Furlong, at sixty-four, has been singularly effective as a patient activist, not only in spurring research toward a cure for the disease but in working with doctors and drug companies to improve care. In 2001, she helped lobby Congress to pass legislation that has resulted in more than four hundred million dollars for research into muscular dystrophy, of which more than a hundred and sixty million has gone to Duchenne research—far outstripping the money raised for Duchenne by the Muscular Dystrophy Association.
We applaud Pat Furlong for her dedication to muscular dystrophy and hope this article can inspire any individual to work hard for what they believe in.
To read more click here, or click on the article photo below.
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